Who can participate?

  • Individuals with HCM or (“HOCM”), or a gene for HCM
  • 8 to 60 years old
  • Relaxed or active lifestyle
  • With or without an ICD (defibrillator)
  • Ok to participate in other studies at the same time

What the study involves:

  • Interviews and questionnaires by phone and/or over the internet – No geographic limitations to participate
  • Wearing a Fitbit pedometer a few weeks per year – yours to keep

Sports and HCM

The safety of vigorous exercise for those with HCM is unknown, and current guidelines recommend that HCM patients refrain from participation in competitive sports more vigorous than golf or bowling.1, 2 Despite these guidelines, a recent survey has suggested that some patients with HCM do participate in more vigorous sports.3

This study does not endorse competitive sports for HCM patients. Rather, we want to obtain information on the risks and benefits of exercise at all levels, by following individuals over time at whatever level of exercise they are currently engaged in.

1) Maron, Zipes, et al, 36th Bethesda Conference: Eligibility recommendations for competitive athletes with cardiovascular abnormalities. J Am Coll Cardiol, 2005
2) Gersh, Maron, et al, 2011 ACCF/AHA Guideline for the diagnosis and treatment of hypertrophic cardiomyopathy. J Am Coll Cardiol, 2011
3) Reineck, Day, et al, American Journal of Cardiology, 2013